Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in ...

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for ...

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA ...

Robin Collins is a self-described “little old lady.” She’s 4 feet tall in her wheelchair and unexpectedly hurtling toward age ...

For columnist Connie Chandler, finding a community filled with love, admiration, and support has made all the difference in ...

After a weekend with her SMA community, columnist Brianna Albers faces a difficult truth: Some things are hers to achieve, and some are not.