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Muscular Dystrophy News
2 天
Going gray prompts questions about the impact of caregiving on my life
Columnist Betty Vertin is going gray — as in, she's decided to stop coloring her hair. Did DMD play a role in this decision, she wonders.
Muscular Dystrophy News
3 天
DMD treatment SMT-M01 gets FDA orphan drug, rare disease tags
DMD treatment SMT-01, a cell replacement therapy, received FDA orphan drug and rare pediatric disease designations.
Muscular Dystrophy News
4 天
Overcoming mental hurdles as I transition to using a walker
For a long time, columnist Robin Stemple resisted using a walker to navigate around his home, but eventually, he had to put ...
Muscular Dystrophy News
5 天
Why patient advocacy is important for those of us with Duchenne
Last Saturday, I had the honor of participating in the third Singapore Health Patient Advocate Connection event (SPACe) ...
Muscular Dystrophy News
6 天
Losmapimod fails to significantly improve FSHD outcomes: Study
Losmapimod, an investigational medication from Fulcrum Therapeutics, failed to significantly outperform a placebo at ...
Muscular Dystrophy News
10 天
A friend in the DMD world makes a difference in my self-care
In my recent columns, I’ve shared several challenges we’ve faced in the past months of my family’s journey with Duchenne muscular dystrophy (DMD). My accessible van will be in the shop for the ...
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